Once finished it would take her a moment or so to focus her eyes again and become alert. *humble brag* (Useless fun fact: Since this day I am still obsessed with grapefruit Hi-Ball and drink one almost everyday.)Įach seizure left her exhausted. She would later email me the following day to thank me for being the most collected and helpful mother of a small child she’d encountered in the ER. The ER doctor brought me an energy water and snacks.
I helped the nurse try to keep Addie’s body on its side while the seizure ran its course.īy then I had been awake for nearly 24 hours, excluding the hour I had slept before her initial seizure.
Her labs came back positive for influenza, despite the fact no one else in the house had been sick and we had all gotten the flu shot.Īt some point I got up to wash my hands and the nurse says, “oh, there she goes again.” I turned around to see Addie convulsing again. Assessments were done, IV was placed, labs were sent, more Tylenol was pushed. This room was also the same room where they had to drill into her leg bones to get a line when she had septic shock at 6 months old. I don’t know how other ED’s work, but at ours the lower the number the more severe they consider you. Due to her age and medical history they took her right into room #1. We arrived at the Emergency Department and were greeted by a team ready to take her in. It was my first ride in an ambulance and Addie’s second, her first being her trip to Oakland at just a couple months old. But I took it, as well as all the other “hard” photos I’ve shared on this blog, for the purpose of being able to look back and see all she’s overcome. If the notation of me taking this photo concerns you, I agree. And for the first time for either of my children I called 911. My husband was so calm and in control while I was completely losing it. This was truly the most terrifying moment because I had zero idea what to do. I’ve seen my daughter go through terrible things before, I’ve even had to help hold her down while terrible things have been done to her. She drains of all color, her lips turn blue and foam forms from her mouth. As he’s getting up to look at her, Addie gasps, contorts, and starts convulsing. I check her temperature – 105.1! I wake up my husband and ask him what he thinks I should do since he had been trained as a paramedic in his early 20’s. I look in Addie’s crib and she looks awful and is burning up again. My husband wakes me up when my alarm starts going off and I get up. I checked her temperature one more time, 99.9 *phew!*, and set an alarm for when I could give her another dose of Tylenol. I continued to sit next to her crib but by 3am I could no longer keep my eyes open and she had settled into a more restful sleep. By 1:30am her fever was up to 103.5 but I still couldn’t give her more Tylenol yet. I sat next to her crib and held her hand, and tried to keep a cool washcloth on her. I then carried her upstairs to her bed where she woke up and began crying as though she was truly miserable. I stayed up with her till 12:30am at which point her fever was 102.6 and I was able to give her another dose of Tylenol. Throughout the day she remained playful but seemed a little more tired than her usual self. Normally I would have alternated giving her Motrin and Tylenol to stay on top of it. Since her cardiac catheterization three weeks earlier, where she was started on a daily aspirin regimen to prevent blood clots from forming on the devices patching the holes in her heart, we could only give her Tylenol to manage her fever. Of the three prior to Thanksgiving 2017, she’d only been out of the hospital and healthy enough to attend one! She’d worn a size 6m onesie as a two year old that said “My First Thanksgiving.” So naturally on November 19th, 2017, just 4 days before we were to host about 20 people at our house, Addie spiked a high fever. November 19th, 2018: Just seeing the photos from one year ago come up on my Timehop app makes my heart race and fight or flight kick in.
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